December is the time to gather with friends and family and celebrate the holiday season. At The Parkinson Alliance, this December also marks the one year passing of our beloved co-founder, Margaret. As we look back on this year, we take pride in having carried on Margaret’s goals for the Alliance.
Margaret devoted herself to educating the Parkinson’s community about anything that may improve the quality of life and to raising money to fund Parkinson’s research. These core principles remain at the heart of The Parkinson Alliance. Under the leadership of our President and CEO, Carol Walton, the Alliance continued participating in educational seminars and area events to empower the community, growing the number of participants in our patient-centered research, and working on various Team Parkinson events to raise money for research.
This year we completed and published two reports: (1) Non-Motor Symptoms of Parkinson’s Disease; and (2) Dyskinesia, Off-States and Parkinson’s Disease. We hear over and over how our reports help validate and support the individual’s experience and help bridge the gap between patients and their care providers. These reports, as well as all of the reports we have published, are from the patient’s point of view and available for you to read at no cost. You can see a complete listing of all of our reports here.
We also funded research grants, including a pilot study expansion study to help clarify the relationship between walking and talking and to develop new dual- and multi-task interventions to directly benefit Parkinson’s patients. We also funded a project that assesses the degrees to which stimulation frequency parameters in deep brain stimulation affect gait. You can read more about these grants here.
In addition to the Parkinson’s Unity Walk held in April, throughout the year we held Team Parkinson events, such as Team Parkinson at the Los Angeles Marathon, Team Parkinson 5K & Fun Run at Carnegie Center, and the Food, Wine & Maybe Tuscany.
John Ball and his amazing wife, Edna, of Team Parkinson were featured in the LA Marathon’s “35 Reasons” video series. We encourage you to watch this very inspiring video about his commitment to the Parkinson’s community and why he runs.
With your support, we have accomplished so much in 2019. We are proud to continue to honor Margaret’s legacy and push forward on the road she started some two decades ago. We wish you, your family, and friends all the best this holiday season.