We are excited to announce that our new survey, in partnership with Dr. Sandy Gibson from the Department of Counselor Education at The College of New Jersey: The Use of Cannabis to Treat Symptoms of Parkinson’s, is now open online.

The medical use of cannabis has grown in popularity over recent years for many diseases, including Parkinson’s. This survey aims to better understand the extent and effect of the therapeutic use of cannabis to address a myriad of Parkinson’s symptoms.

We understand that cannabis use can be a sensitive topic for some. Our Patient-Centered Outcomes Research Surveys have always been conducted confidentially. This survey is different from past surveys, as data is being collected by The College of New Jersey and no demographic data is required. Your responses provide firsthand knowledge and experience to help shape and improve the quality of life for everyone affected by the disease.

The Cannabis survey is now open online and will only take about ten minutes of your time to complete. Data collection for this report has been extended and will conclude on July 1, 2022; however, we would appreciate it if you would complete the survey at your earliest convenience.

Click here to take survey.

Your participation matters. The “voice” of people with PD needs to be heard. If you have any questions please call us toll-free at 800-579-8440 or contact us.

The Parkinson Alliance strongly believes that the patient’s voice is essential when evaluating new treatments and healthcare in general. Since 2002, we have conducted Patient-Centered Outcomes Research to:

• Validate and support the individual’s experience
• Empower people with empirically-based recommendations that may improve
  quality of life; and
• Bridge the gap between patients and care providers, scientists and industry.

Our work captures a broad scope of symptoms including, motor and non-motor symptoms, as well as other facets of well-being such as resilience and coping skills.We believe that as someone affected by Parkinson’s disease, you have unique power to advance research. Your input can provide the firsthand knowledge that helps identify and answer the questions that will improve the quality of life for everyone affected by the disease.

Our unique approach engages individuals with Parkinson’s, carepartners, and clinicians alike. Thousands of people have participated in our research survey process, which identifies issues that impact quality of life; while our consensus conferences pinpoint expert knowledge to address these issues.

Our goal is to provide reliable useful information to help researchers better understand and treat Parkinson’s, and to help people make informed decisions about their care to improve outcomes and alter the course of the disease.

“We are proud to have been one of the first to include the voices of people with Parkinson’s in everything we do. New and better treatments would not exist otherwise.”

— Margaret Tuchman
Founder, The Parkinson Alliance, and person with Parkinson’s disease.

Read our latest research survey reports below.

Download a PDF Summary of Research Projects