The Parkinson Alliance Reports Survey Findings on Anxiety and Parkinson’s Disease from the Patient’s Perspective
KINGSTON, N.J., December 15, 2018 — The Parkinson Alliance released the results of their 29th survey-based research entitled, Anxiety and Parkinson’s Disease: The Patient’s Perspective, based on self-report questionnaires from 1,173 individuals with Parkinson’s disease (PD) who were asked about their experience with anxiety and quality of life. The survey found that 35% of the participants reported experiencing “moderate” or “extreme” levels of anxiety and over half said that anxiety had a negative impact on their quality of life.
Neuroscientists and clinicians specializing in PD are learning about the various manifestations, causes, treatments, and implications of anxiety for People with Parkinson’s (PWP). What appears to be missing is a deeper appreciation and awareness of the patient’s perspective of his or her symptoms of anxiety and the perceived impact that anxiety has on day-to-day life. The Parkinson Alliance survey was designed to obtain the patient’s perspective about anxiety and about an intervention that may help improve well-being. The survey results indicated 19-41% of the participants in this survey reported that anxiety has a moderate to extreme impact on everyday activities, including fear of falling when standing up or walking, relationships with others, social engagement, engagement in hobbies/leisure activities, engagement in volunteer activities or work, health status, and overall quality of life.
Dr. Jeffrey Wertheimer, Chief Research Consultant for The Parkinson Alliance, stated, “Despite the increased awareness that anxiety is commonly experienced by individuals with PD, anxiety remains under assessed and undertreated in this population.” Dr. Wertheimer added, “Getting a formal mental health assessment and education about types of medications and non-mediation-based intervention is very important to improving the well-being of PWP and those who share their lives.” In the current study, in addition to some reported benefit from medications, a large percentage of participants also engage in non-medication-based intervention for anxiety, including exercise, relaxation, music, meditation, and psychotherapy.
Please visit our website to view and download the full report, which includes take-home points and general recommendations for individuals with Parkinson’s disease.
About The Parkinson Alliance
The mission of The Parkinson Alliance is to raise funds for research to end Parkinson’s disease, support the development of new therapies, and improve the quality of life for those living with the disease through patient-centered research and resources. We fund research and conduct our own – patient-centered outcomes research. We are the umbrella organization for Team Parkinson events and the Parkinson’s Unity Walk.
The Parkinson Alliance
Source The Parkinson Alliance