The Parkinson Alliance Presented Patient-Centered Research on Vision and Parkinson’s Disease at American Congress of Rehabilitation Medicine in Dallas, Texas
KINGSTON, N.J., October 3, 2018/ — The Parkinson Alliance presented its survey-based research, Vision and Parkinson’s Disease: The Patient’s Perspective, at the 95th annual conference of the American Congress of Rehabilitation Medicine, held on October 3, 2018, in Dallas, Texas, which had over 2,300 attendees and representation from 66 countries.
Research indicates that the prevalence of visual symptoms in Parkinson’s disease (PD) may reach up to about 80%. Associated signs and symptoms of visual disturbance may include double vision and deficits in vision clarity/blurred vision, color vision, blink reflex, pupil reactivity, and saccadic and smooth pursuit movements, as well as more complex functions such as difficulties with visual attention, spatial orientation, and visual hallucinations. Despite the high prevalence rate, visual symptoms are often underreported and undertreated for individuals with PD. Our report provides a better understanding of this complex topic from the patient’s perspective, including its impact on day-to-day activities and the quality of life of patients.
Data was gathered from 1,101 individuals with PD. Individuals reported experiencing a broad scope of visual symptoms. The most frequently experienced vision difficulties involved difficulties with reading, nighttime vision, glare sensitivity, visual fatigue, and nearsightedness. Vision disturbance adversely impacted engagement in daily activities. Seventy-three percent reported that vision difficulties adversely impacted the quality of life.
“Understanding patients’ perspectives about their experiences have important implications for rehabilitation specialists, particularly in the context of a “patient-centered,” team approach. This report highlights many pertinent points regarding perceived changes in vision as it relates to age and disease duration and important implications related to the impact of vision difficulties on day-to-day functions,” comments Jeffrey Wertheimer, Ph.D., ABPP-CN, clinical neuropsychologist and Chief Research Consultant for The Parkinson Alliance.
To learn more about our Patient-Centered Research and to download our report entitled Vision and Parkinson’s Disease: The Patient’s Perspective, please visit our website.
About The Parkinson Alliance
The mission of The Parkinson Alliance is to raise funds for research to end Parkinson’s disease, support the development of new therapies, and improve the quality of life for those living with the disease through patient-centered research and resources. The Parkinson Alliance stands as the umbrella organization for the Parkinson’s Unity Walk, Team Parkinson, and other fundraising events held around the country. Taken together, we have funded over $30 million in research since our founding.
The Parkinson Alliance