The Parkinson Alliance announces results from 14th Survey on Resilience in Parkinsonís Disease; Learn what you can do to help
The Parkinson Alliance has released the latest report on their survey on Resilience in Parkinson’s Disease.
There are copious amounts of research investigating the debilitating motor and non-motor symptoms of Parkinson’s disease (PD), but there has been little research about resilience in the context of PD. Since the patient’s strengths and the resilience that is necessary to persevere through the challenges of living with PD are less commonly assessed and/or highlighted, The Parkinson Alliance’s 14th survey investigated the patient’s perspective about resilience when confronted with symptoms of PD. This report is entitled “Resilience in Individuals with Parkinson’s Disease with and without Deep Brain Stimulation.
There were 825 individuals who participated in this survey, including 284 participants with PD who underwent Deep Brain Stimulation (DBS) and 541 individuals with PD without DBS.
Survey results include the following DBS Highlights:
- DBS therapy has had a favorable impact on quality of life, self-confidence, and outlook on the future.
- 83% of the participants who had DBS therapy experienced satisfaction with this intervention, with 12% reporting that they were dissatisfied with DBS therapy (5% were not satisfied nor dissatisfied).
- A significant portion of participants who have had DBS therapy reported that DBS therapy significantly improved their ability to engage in activities in social settings inside and outside of the home.
- Thus, if a good candidate for DBS therapy, such intervention may lead to improved self-confidence, general outlook, engagement in activities, and quality of life.
The Resilience report as well as prior reports are available on DBS4PD.org
The Parkinson Alliance is currently working on its Falls in Parkinson’s Disease report and will release results at a later date.
What you can do
The Parkinson Alliance is currently looking for participants for its 15th survey on “Falls in Parkinson’s Disease: Increasing our Understanding about Falls and Related Risk Factors.” There is no charge— all you have to do is provide your mailing address, complete and mail the survey back. A paid return envelope is provided. All information is confidential! Here’s how you can contact The Parkinson Alliance to sign up to receive the latest survey.
Click here to learn why your participation is so important.