It’s Spring (complete with snow!) and a time for new things. So it seems the right time to be launching a newly designed website for The Parkinson Alliance.
Our team worked really hard on making our site easier to use, and I hope you think so too. We also took care to showcase the people who support us and help us raise the funds to do our job—fund research!
I’m proud of all the scientists and projects we’ve funded—more than $30 million in all, the Alliance together with the Unity Walk and Team Parkinson. And the fact that thousands of people now participate in our quality of life surveys—important patient-centered outcomes research that no one else is collecting in this way.
But I can’t help but feel it’s not enough. Anyone who lives with Parkinson’s as I do, or has a loved one who does, feels that. Sure, we know a lot more about the disease and its effect on our brains and bodies, how it develops and what might be the causes. And treatments—medication, surgery, speech and physical therapy—have gotten more refined. But the true breakthroughs that once seemed just over the horizon are still beyond our immediate reach. It makes me mad sometimes that this disease is so complicated!
But mostly I’m just impatient to finish what my husband Marty and I started nearly 20 years ago. So I hope you join us at the Unity Walk this April and our other events. I know together we can get the job done and end Parkinson’s.
– Margaret Tuchman